But I was patient. I knew the follow-up CT scan had shown that what looked ambiguous in February remained the same size a month later. A good sign, since what cancer does is *grow.* So I waited. But as late June approached and my nerves began to twitch, I got a phone call from my doctor's office explaining it was too soon for a PET scan and insurance was saying they wouldn't cover it.
I didn't accept that for one second. I insisted they pull up my records, which showed I certainly was due for a scan based on the 3 month rule. After some investigation and several additional phone calls we finally found the actual problem. Medicare (my primary insurance) has decided to allow 3 PET scans in a person's lifetime. Which means I've had about 7 lifetimes worth of scans already!
Needless to say, I'm not very happy with this development. Clear PET scans also cleared my mind and soothed my nerves, so missing a scan has been stressful.
But we didn't simply abandon the idea of a scan altogether. The scan I usually would have undergone is a combined PET and CT scan. Since my primary insurance declined coverage of the PET, my secondary insurance followed suit. But I was still allowed a CT scan. So we scheduled one of those for early July.
The CT scan I got required 2 types of contrast (which helps to differentiate things on the scan). The first involved drinking a giant cup of liquid.
And this is after I'd drank the first 1/4 of the contrast |
The good news is that my CT results appear normal. It's not as good an indicator as the combined PET/CT, but it will have to do. Insurance won't pay for another PET unless there's a change in my status that leads us to believe my cancer has returned. Most likely I would get a CT scan showing potentially cancerous activity. Then insurance would pay for a PET as a follow-up. Hopefully I won't find out. As long as my CT scans are normal, I'm willing to give up the injection of radioactive sugar I was receiving every 3 months with my PET scans. There go my dreams of a radioactive-sugar-induced transformation to a superhero. A sense of having wet my pants is a poor replacement.